"Have a good attitude about things, speak positively of others, and serve the best you can. Change your negative thoughts to thoughts of faith. God will fight your battles for you, but you must be willing to show him that you trust him."


Friday, February 4, 2011

More doctors equals more inconvenient.

Boy has it been a busy month. Since my last post on Christmas I have gone to six different doctors appointments. 4 CF ones, 1 GI and 1 sinus. I have also got a picc put in and had a bronch done. For those of you who don't know what a bronch is, it is when my doctor goes down to my lungs through my mouth, squirts some saline,, sucks up some mucus and basically cleans me out and takes samples of my mucus to see if I am growing anything. Before I got my picc in on the 19th of January I blew a 72%. A couple days later I had my bronch. THen today (2 weeks after my bronch and 2 weeks with my picc) I blew a 73%. My sats went up 3 percent. But my PFTs basically didn't even move. It doesn't make any since. The bronch showed that I was growing a STAPH which we already knew and that is what the vanco and cefepime are fighting (my 2 iv meds), but today I was told I am also growing a seperate bacteria- a think they said it was mycobacterium avium . This one is obviously not being affected by my IV. My doctor decided to refer me to a infections desease specialist. Apparently he is suppose know how to treat this bacteria. I go back to see the doctor next Friday. Which means I have to miss school and have my PICC in during the assembly. This stupid PICC line sure is making cheer difficult. CF is really kicking me in my butt right now. I hate it! I am suppose to be the one kicking it's butt, not the other way around. I am tired of doctors, tired of IVs and just plane tired. This whole CF is becoming more and more inconvenient. Hopefully DR. PC (the infectious disease specialist) will be able to figure out how to treat this stupid bacteria so I can be back on my ball. School has been tough lately. I am not getting any sleep because of school, cheer wares me out sometimes. I think I need a break! Ahhh!