It has been a while since I have been on my blog. I have been so busy with school and cheer and getting sick and then getting over it and then getting sick again. Okay so I have going to the doctor a lot lately, well this year in general. My numbers are not dropping anymore, but no longer are they going up. I hit 81 when I was on IVs over the summer but sense then they have dropped to 72 and as of my last appointment 74. I have been put on a few different rounds of oral antibiotics, but they haven't really helped my lung function any, they have made me feel tons better in general but my lung function hasn't really gone up any. At the doctors he suggested that maybe I am growing something else other than just staph, something deeper in my lungs. For the past couple of months every time I go to the doctors they have been saying I have this crackle in my right lower lung and he was saying that maybe there is something growing down there that isn't showing up in the culture (when the swab me). That is when he brought up the idea of getting a bronch done. I have never had one before, but that word worries me because my sister has done it a couple of times and every time she gets it done she just seems to get sicker and has to be put on ivs, not because they found something growing or anything, but the procedure in general just seems to do something that makes her lungs tired and then she gets sick. I don't really want to get that done and then still have to be put on ivs, it just worries me. My other option he said was to go on another round of ivs. I had my second picc (after 6 or 7 years of not having one) over the summer and that was because I felt like crap and asked for it. Now I don't feel bad. For the most part I am feeling pretty dang well, especially for just getting over a cold. Personally I did feel like I needed IVs. So I asked for a third option. He said that we could try another oral antibiotic for a week and see hows that goes and I jumped for the option. I promised him I would get all my treatments in plus some and along with doing the vest I would have someone pound on my lower right lung to get all that gunk that is causing the crackling loose so I will cough it up. He rather do the IVs or the Bronch but he liked my plan and felt like it was my choice. I am just not ready for another PICC. I was hoping I could go longer without needing one; i especially don't want it during cheer season. Well anyways hopefully this oral antibiotic and the extra treatments with extra pounding (PT) my numbers will go up and the doc will be satisfied. I will keep you updated.

On a better note.....MERRY CHRISTMAS!!!

You may ask why I am blogging so early christmas morning and my answer to that is because I wake up so early on christmas, but my parents wont let me wake them up till a certain time haha. I needed something to do so I decided heck, mine as well updated everyone on my recent doctors appointment. I love Christmas, it is such a great time of year. It makes me so happy and helps me to feel good no matter how I am physically feeling. It is a time of love and family. The kids on Christmas Eve

wow it's been long!

Wow. It has been so long since I have been on here. School really get's in the way of everything. I have been so busy with school, cross country, and trying to keep myself healthy. It is all going good so far. I have been able to keep my grades up. All A's and B's still. And I managed to keep myself healthy when everyone at my house was sick! I did end up getting a cold from some kids at school, sadly. I am still in the process of getting over that. Cross country definitely got better. My best run so far was probably the one at Rancho High School. It was a 2.8 coarse and I ran it in 26.08! Or something like that. I don't remember it was a month ago. My last couple of meets haven't gone so well. I had to sit out of one because of stomach pains, hurt so bad I couldn't even stand up. Then I started one but coach made me get out because I was coughing so much at the starting line. I couldn't breath and the race hadn't even started yet! Then this last one I ran a good 2 miles but then I started throwing up and my friend that is also on the team that ran early pulled me out. I was mad at him for taking me out of the race but he made a good decision there was no way I could have finished that last 1.1 mile (which may i add had 2 hecka steep hills!) He walked me to the shade where I through up so more and then we walked back to where my team was and I laid down in our shade and slept for 20 minutes. I felt better after that but since I haven't ran good my last 3 meets coach won't let me run regional this weekend. I guess that is good because there is no way I am getting over this cold before then. Oh well. Cross country was such a help though, it really helps keep my numbers up! I had a doctors appointment. Actually I had two in one day. My stomach doctor has been a real pain! I had an appointment with him 9/16/10 and all he said was keep doing what your doing and ill see you back in a year. Seriously?! Obviously what I am doing is not working seeing as I am still having stomach pains that make it that I can barely walk! He doesn't do anything! So we called my CF coordinator and she said that we need to call and schedule with him and see if he will do anything and if not we should find a new doctor. So we reschedule. 10/11/2010 i lost 3 pounds since the last appointment. He finally is like oh that's not good we need to do something about this. No duh! He put me on a new medicine called mucomyst and pumped up my miralax and my ducolax. Hopefully it will help. So far I have seen a little improvement. Im real dissappointed about the whole thing. I was doing so good far a while. My weight goal was 117 and I was almost there! But then I had to go and loose 3 pounds and now I have nothing to impress my CF doctors with at my next appointment. So I ended up getting a cold. A real bad one I might add. I was coughing non stop and it was a nasty sounding cough too. After my stomach appointment I went back to school for a couple classes and then left for an appointment with one of the CF doctors. My SATs were 99 which is great and my FEV1 was 74%. I was surprised I was still in the 70s. But that is down 7% from my last appointment (which was when I got my picc out). The doctor put me on bactrim and prednisone. He also said to do a nasal saline spray prior to my nasonex which should help get things moving in my sinuses. Since then I have started feeling better but the cold still wont leave. I am still coughing tons!! I am ready to feel better again. I'm pretty sure I am almost over it. But yeah that is my update. Oh and my brother goes into the hospital tomorrow. He got a cold too but he ain't doing so well. His PFts are usually in the high 80's well at his last two appointment he blew a 69 and a 71. Super low for him. So he is getting addmited tomorrow and getting a PICC. Hopefully it goes well.

I'll try and keep my blog more updated. Time management is key!

Next appointment is CF clinic on 10/24/10.... 5 days before my 17th birthday!!

Christina & Ali America's Got Talent Semi Finals Aug 24, 2010

They made it to the top 10! Go Christina and Ali!

Missing a Medicine.

Last week I think it was, we ran out of hyper-sal. I didn't think it was going to be that much of a deal. Figured we could just call it in and I would have it the next day and if not I would be OK, because during the school year I was always skipping it (bad idea for me, but i fixed that) and felt fine. Well we went to go fill it and they sad we needed a new prescription because ours ran out of fills. Okay not a big deal. We would call the office and get it and we would be good. Well silly me forgot how stupid our doctors office is! We called and a couple days later our CF coordinator called back and said she just barely got the message! They just pile stuff in a basket for her. She really needs a break. Well anyways, we got the new prescription for all 3 kids (somehow we all ran out at the same time). We go and take it in. Like the next day or something we get another call from CVS saying they need a doctors signature before they can fill it. Like seriously come on obviously they renewal of a prescription means it is OK. Finally we got it filled. But I left for Arizona with my cousins a couple days before. By then I was feeling like absolute crap! My chest was so tight and I was getting tired and coughing all the time. I couldn't take it anymore. I was doing extra treatments and swimming all the time and even running hoping it would help, but it really didn't. My mom got it called into a CVS in Arizona. But then my cousin kept saying that one was closed down, so we didn't go get it. Then I figured heck mine as well go see, so I walked down there, but then my mom called and said it was more expensive than she thought so I walked back. The next day my Aunt went down there and got it and it ended up being only $8. Boy am I annoyed of CVS. My Aunt walked in and I rushed to the door. It was like Christmas! I was so excited she had it. I ran down the whole and started it right away. I thought I felt like crap and was coughing a lot...boy was I wrong. Doing that hyper-sal made me cough sooo much! But I didn't care. I was just glad to have it. I did it and coughed up so much gunk. I coughed all the way to the lake, but when I got there i was finally able to breathe again. It felt GREAT! Not have a medicine really does make a difference! You may not realize it at first, but after a few days of missing, it starts to hit. I am so thankful for all the medicines I have and all the study's and trials that are going on to get me more!

By the way we left CVS after that (we have been having problems with them for a while and this was our last straw). We are now giving Walgreens a change. lol

Skye wants YOU...

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Thursday, August 5, 2010

Skye wants YOU...

To have one of her t-shirts!

I will be giving away one of Skyes 2010 T-shirts we had made for the CF walk that we didn't get to attend!

Skye was admitted to the hospital for CF related issues during this time.

There is always next year!

WINNER WILL BE PICKED ON THE 12TH OF AUGUST.
ENTRIES ARE ACCEPTED THROUGH UNTIL MIDNIGHT!
THAT A WHOLE WEEK!!!

They are screen printed shirts, awesome quality!

I wear mine constantly!

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Awareness...Just a CLICK away!

Great Week.

It has been a GREAT week. Well it has been great since Friday night!

Friday night ended with a sleepover with my two best friends Gabi and Alexis! Saturday morning started with a breakfast with all of my friends for Britton's birthday, but it didn't stop there. A bunch of them stayed and hung at my house all morning and all afternoon until it got to hot that is because our air wasn't working. I love hanging with them. We can lay around and do absolutely nothing, and have a BLAST! Later Saturday I walked over to the church park for the Pioneer Day celebration. Which I must say was one of the BEST in a looong time. Tori sang beautifully and all my bestest friends were there to spend it with me. It was very hot and boy did I look a mess by the end, but it was a very fun-filled day with tons of food and fun.

Since the air wasn't working when we got home we backed up all our stuff (including a long list of medical crap) and headed off to grandmas to spend the night, or so we thought. That night ended up turning into like three days. But it was fun! I love hanging at grandmas house. Especially when all my favorite foods are there. I got my drivers ed done and had plenty of time to work on my CF high calorie cook book I am working on. Thanks to that I am almost done now!

I felt GREAT all week. PICC lines seriously work miracles!

Monday was pretty great too. I got to go to Michael's (scrappbooking store) and pick out paper, stickers, and flowers for my cookbook! It is going to look so pretty! All purple and black with paper flowers and wonderful recipes. I can't wait for it to be done. I kind of through a fit at the store and then was mad the rest of the night to the point where target could barely even cheer me up. But that passed.

Tuesday was good too. It was long but good. I felt good after doing an extra treatment to get some gunk out of me. We got to go back home too! The air was finally working again! I also got me some ice cream. Bomb Pops and Fudgcicles. My favorite! After mutual I went with Kyle to 7-Eleven and got us some Slurpees and candy for our movie night at Nicole's house! We watched Benchwarmers and laughed the night away. I love that my PICC doesn't hold me back from hanging out with my friends.

Wednesday was amazing! I woke up feeling wonderful. Got ready and then went to the Fashion Show Mall with Tori love and Brianne and my mommy. And got to see the huge department store sized Forever 21! While I was there I got to see two of my awesome older, graduated friends Hannibal and Manuel! I didn't think I could be any happier. Until my mom let me get 4 new shirts and 2 Crepes for lunch. When I got home I did my hair and another treatment and vest then went to Sammy's to hang out with cousins and friends! We played CRUD and then just sat around and talked. It was nice to hang out with friends and my friends always love it when I do my PICC medicine.

Today was a great success! I had my follow-up appointment. Good news! My PFT's went up again. I blew a 81% !! How exciting. I was so happy. I couldn't stop smiling. And to add to the greatness I got my PICC out. Man was my arm irritated from all that tape. It's all good now. My brother also had his follow up appointment. And guess what?! He went up like 20%. He was a 69 and now he is at 92%. (That's what happens when you go from not ever doing your treatments, to doing all of them plus some!)

I am so happy. I am feeling great and all is going well. To add to the joy and excitement my favorite cousin from arizona is coming to visit and then I get to go back with him for a week!

YAY! I love my life.

Pictures are soon to come! (internet is going to slow right now)

Carrie Underwood - Temporary Home

I absolutely love this song. I heard it on the radio today. Wasn't my first time but I really listened to the lyrics and it made my smile but want to cry at the same time. It was a weird combination, but I know this is my temporary home and that I am just here for a while and then I will move on, but while I am here (which I plan to be for a long time) I am going to cherish it and live life to the fullest. Always being happy with a smile and my face. Doing the best at all I can do.

"This is my temporary Home
It's not where I belong.
Windows and rooms that I'm passin' through.
This was just a stop,on the way to where I'm going.
I'm not afraid because I know... this was
My temporary home."

This is our temporary home.

Another song of hers that I love is Jesus Take the Wheel. We can't do everything on our own. You can be strong and try but when it comes down to it, you need help. I know I need help. And I can get the help through faith and prayer.

Jesus, take the wheel
Take it from my hands
Cause I can't do this on my own

I'm letting go
So give me one more chance
To save me from this road I'm on
Jesus, take the wheel

Sometimes times can be rough. I may not be feeling good, or I could be having a hard time with school or in a tough spot with my friends. Whatever it may be I know that I can turn to the Lord and pray and everything will be alright. I just need to remember that and be happy.

Everything will be okay.